When I was a child, my dad took the family to Virginia to meet his peeps and to see the land from where his family hails. My brother Todd and I were probably 11 and 13 at the time.
Dad took us to a slave cemetery outside of Bracey, Virginia, where his aunt and uncle owned a farm. I knew little about American slavery back then but I knew it was exploitation and that the conditions under which slaves labored were brutal.
So I was surprised to see tombstones with ages 75 and older.
My father told me that the slave community considered a fellow slave “blessed” when they hit age 75 and deserving of honors, including a proper burial with head stone.
Slaves did not retire. They worked until they died. Some had chronic diseases, including diseases like sarcoidosis... Some of those slaves lived until their 90s, according to their head stones.
Today, Americans on average live 77.6 years, according to figures from National Center for Health Statistics at the Centers for Disease Control and Prevention. The life expectancy of American white males is 76 years compared to 70 years for African-American males.
The life expectancy of American white women is 81 years compared to 76.9 years for American black women.
Humans have lived rich full lives in the face of chronic disease since the dawn of time. I simply intend to be one of them. It is hard work, but working to live is better than doing nothing and waiting to go.
Recovery-wise, my docs and I talk about six months to a year. There is a chance that I might have to continue a maintenance dosage of prednisone, around 10 mgs daily, but I am focused on tapering off to nothing and seeing what it is like.
I was first diagnosed with sarcoidosis in 2005. It was discovered after an x-ray for different problem. There was evidence of sarc in my lungs, but it was dormant back then. Now it rages in my lungs and might affect my heart, too. The treatments, however, are working. I am feeling good, although there are some interesting side effects.
I am hoping to control it again through healthy diet, exercise and supplements. My mom found a homeopathic pharmacist I am going to work with, too. I'm going to look at everything under the sun to lick this thing.
I have read stories about people living with and managing sarcoidosis and other chronic diseases for 25, 30 years, flare-up free. I imagine myself being one of those people. I am trying to live a lifestyle that will help me achieve that goal.
Disease has been around forever and people have lived rich, full lives while dealing with it.
(Note: Thanks, mom, for pointing out the missing pronoun. Even editors need editors...;)
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