Showing posts with label Positive airway pressure. Show all posts
Showing posts with label Positive airway pressure. Show all posts

Friday, August 14, 2009

Cutting oneself some slack

(I shot this today while following my dad along a trail in Lakewood, N.J.)

Thursday, I had a blood pressure reading of 120/80 – the lowest my blood pressure has been in more than a year. My doctors’ goal was to get it to 125/85. I beat that.

Good for the heart and good for the mind. I was worrying a lot about the heart. This development is especially exciting because I am still on prednisone for my pulmonary and cardiac sarcoidosis. I am walking three miles a day and lifting light weights. I am sure that, combined with a reduction in the amount of prednisone I am taking – helped lower the blood pressure.

I’m trying to lose weight because I have obstructive sleep apnea, too, which makes blood pressure soar. I sleep with a CPAC - short for continuous positive airway pressure device (a mask attached to a tube attached to a small, quiet motor - but I want off of it. I am trying to lose weight even though prednisone is working hard against the goal.

Oh, I should give you an update: The pull-ups thing was a miserable failure. I gave it my best shot, but my body was too weak to make good on that promise. I sulked for a while about that and then accepted the fact that I would have to start from scratch to rebuild myself.

My goal is still there. The method is now more practical. Crawl before walking. Walk before running. In New Jersey, I started with a 1-1/2 mile walk. Now I am up to three miles. Every day. I walk with my dad and/or Tobie most of the time. I walk an additional 1-1/2 miles at night with my mom. Tobie’s in tow, too.

My dad caught me obsessing about my weight the other day – prednisone rage. My frustration was off-the-hook. I knew it and could not help myself. I was obsessed with the feeling of failure and futility. “From where I sit, this is a good day,” he said. “Your blood pressure is normal for the first time in a year and your clothes are fitting differently, and you know it.”

He was right. My clothes were looser. I was standing taller. My ample belly…was finally starting to shrink. The water retention, the back fat (prednisone really stinks)....it will go as I continue reducing the prednisone...

Dramatic change will not occur in a weeks or two months. I have to be patient and diligent.

And I have to cut myself some slack.
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